PKU adult Debbie Colyer interviews me about PKU in Australia

As a lot of you will already know thanks to Facebook, my good PKU adult friend Debbie Colyer has been staying with my husband and I in Melbourne for the last couple of days.

Having Debbie stay has been fantastic – we’ve had a real PKU fest and have had a lot of discussions about raising PKU awareness and fostering more of a sense of community amongst PKUers here in Australia. A big focus for our conversations has been the huge differences in support and even treatment between PKU clinics within Australia and also the issues facing PKU adults here in Australia. We’ve also done a bit of cooking, and I’ll post pictures and recipes in the coming days.

Last night was Debbie’s final night staying with us and she sat down with both Ed and I and interviewed us both about PKU. Debbie has been taking part in the Vodafone World of Difference program for the better part of the last year which has seen Debbie work full time for the New South Wales PKU Association. She has had the opportunity to learn a lot and has been to two major PKU conferences in the US, interviewing people linked in some way to PKU along the way.

I was thrilled Ed agreed to be interviewed by Debbie, though I did have to promise him that I wouldn’t get offended, angry or upset about anything he says – I meant it too, because I know how difficult I can be to live with and to love sometimes when I’m not as compliant with the diet as I should be. I’ll post that interview in the coming days as well, but in this post I have included a 25 minute long interview with me which discusses a lot of issues surrounding PKU in Australia. I hope you enjoy the interview (which I’ve had to split into three parts because of the length) and any feedback and input you’d like to provide would be really valuable to the exciting things we’re planning to do this year.

Part one:

Part two:

Part three: