Planning a new and improved Living with PKU… I’m back!
Hi everyone 
After a long hiatus from blogging I’ve finally decided that it’s time to revive things and get it all moving again.
I hope you’ve all been well over the last… well… many months (!) since I’ve been gone and certainly a lot has happened in my life.
Perhaps most notably (for the purposes of this blog at least) has been my ongoing struggle with my diet since having my daughter, who is now a big 1 year old! With motherhood has come a whole new set of challenges with the diet and I freely admit to the fact that I have found it much harder to maintain my levels than I thought I would.
Anyway, enough on that.
The point is, I’m back. I’m thinking the blog will take a bit of a different direction to it’s previous format of almost 100% recipes. Don’t worry, I’ll still be posting recipes, but if I’m honest I no longer get a lot of time to get into the kitchen and experiment. Hopefully that will change as Miss E continues to grow up and become more independent. However, I intend to invite guest bloggers to join us, cover events and try out other new things too. A URL change might also be in there… we’ll see!
Please bear with me while I figure out what feels right for the new and improved Living with PKU
on January 24, 2012 on 7:44 am
Hello,
I am a 30 year old woman with pku. I was diagnosed at birth and have been on this low protein diet for awhile. I am recently married and my husband and I are talking about having a baby. I am havinga really hard time finding low protein foods to eat. am only allowed less then 10 gms of protein a day. is there any advice you can offer on what I can eat at lunch etc.
on February 6, 2012 on 5:34 am
Hi Guenevere, thanks for commenting! It really depends on where you are and the access you have to low protein products. How supportive/helpful are your clinic? They are probably the best people to talk to and can perhaps help you with meal plans. When I was on the preconception diet I was very heavily reliant on the low protein products. I ate a lot of low pro pasta mixed with herbs, spices and mayonnaise, tomatoes and chopped steamed veggies. I also baked a lot. I had a constant supply of bread (different kinds – some normal loaves, fruity buns etc), biscuits and sometimes cakes too. Every weekend I would cook as much as I could for the week ahead. It took time but it was the only way I could manage. I hope to go back onto the preconception diet for baby number 2 in six months or so and I will be doing the same then. Definitely talk to your clinic – they will be the best positioned people to help further. There is also a group on Facebook for women who have children, are pregnant or planning a pregnancy and it is very supportive. If you are on Facebook and would be interested in joining the group let me know how i can find you and I will add you.
on February 8, 2012 on 5:14 am
Dear Blogger,
Im a student at Manor New Technology High near Austin Texas. I am researching PKU and would like to possibly Interview some one to learn more about PKU. I would also like to know about the history about PKU in your family (if diagnosed) so as to learn more about they Inheritance part about it. Thank You for your time
-Osvaldo Castro
on February 8, 2012 on 9:14 am
Hi there Osvaldo, thank you for commenting. I would suggest you contact the Metabolic Disease Foundation. Their HQ is based in Texas and I am certain they will be able to help you with your enquiry. Their URL is http://www.metabolicfoundation.org. I will also forward your details to their president, Adam Johnson, who has PKU.
Good luck with your studies!